Praying for a Miracle

This journey has certainly had its ups and downs and we have been fortunate to be able to share it with all of you through Holden’s Blog. Your love and prayers have meant the world to the three of us and we will likely now need your support more than ever. Doctors did another catheter procedure on Tuesday to check the pulmonary pressures and see if there had been any improvement post surgery. During the cath, they rechecked Holden’s pulmonary veins, one of which had showed signs of restricting and had been ballooned back in July. Unfortunately, this vein has continued to deteriorate and doctors say there is not much they can do to improve the condition (the disease is called Pulmonary Vein Stenosis).

The Stenosis snuck up on us; we were not really aware of it until just before his first cath exploration a few weeks ago. Because there is no known cure for this disease, it makes all of Holden’s other issues seem insignificant. This was obviously extremely difficult for us to hear and hard to have to tell you. The bottom line is we are not sure how things will go for Holden. Doctors say our little guy may have 2 days, 2 weeks, 2 months, 2 years or 2 decades – we just don’t know. It doesn’t seem quite fair. For now, the plan is to get Holden infection free and home. We are hoping to go home sometime early next week. We will pray for a miracle, so Holden’s body can be healed. In the meantime, we will just love him and appreciate every day that we have together. We are “Holden Faith” that God will guide us down whichever path he intends and ultimately care for our sweet baby boy.

We will update Holden’s Blog as we have updates. In the meantime, thank you for your continued thoughts and prayers.

Below are some recent photos of the little monkey! He absolutely loved playing with his first balloon!

Love,
Daddy, Mommy and Holden

The Little Engine that Could

Doctors confirmed that Holden has another blood infection. The lab was able to identify it and recommend the most effective antibiotic. The little Monkey keeps fighting his way through this craziness. And although we could tell he still didn't feel well today, he looked better than yesterday and had times when he wanted to play, smile and coo. We will likely have to stay in the hospital another week - until his course of antibiotics are complete since they are given via IV. Then hopefully we can bring the little guy home for awhile, returning to the hospital in the Fall for his reflux and hernia surgery. We are so proud of Holden! He knows God has some great things in store for him and keeps going...